I will be writing a more detailed post when I can, but for now, Veiyah Jaielle (Ya'el) Karg went into the arms of our Savior and Kings arms at 10:46pm ctrl on June 7, 2012. Thank you all for such love, Ani
Friday, June 8, 2012
Family and Friends, I have so much to tell you but I am typing this on my phone. I will say as much as I can. Yesterday we had a pukey morning with V. From what we think happened is EVEN WHILE I SAT RIGHT THERE, patting her back while she gag and throw up mucus for over an hour, (this is a regular day at the Karg house) Veiyah aspirated and then continued to go into cardiac arrest. Madi, Selah, and I did everything we could and/or knew how to do. As you all know, Madi prompted me to call 911, we put oxygen on Veiyah, and I proceeded mouth to mouth and chest compressions. Selah screamed, Madi screamed, i screamed. Ambulance came, didn't even try anything and whisked Vei out to the ambulance where they cont'd CPR. They got her breathing a little. Jeremy got there just in time to go with me. The local hospital did a wonderful job stabilizing V till the decision was made to life flight. While in the helicopter, V coded again and they lost her pulse. They got to the University with chest compressions still going. Veiyah lost her pulse another time and they kept bagging and compressing. Compressions went on for 2.5 hrs as they fought to get Vei on the ECMO machine. This will give her lungs a rest and will take all of her blue blood (darkest blood) out and mixes it with oxygen and then puts it back in, this is what they were trying to do with the compressions, but after such a long time, it becomes monotiness. Veiyah's vessels that they needed to access to get to her "last option", were occluded or clogged. We waited for over 2 hours while they tried to access those vessels all while still doing chest compressions on what now was looking like a CPR doll. We were told that they were ready for any decisions we wanted to make. We weren't ready for decisions. Play on. Within a minute of me yelling at everyone about how I didn't have TIME for this right now, because who does and we had JUST moved our room downstairs and made V her own room because she now qualified for a nurse in the home and we were all about to get a little bit of freaking normalcy around the house with someone else being her nurse and ME being her MOMMY, Dr was back in with news that they had access and that Vei's heart was beating on it's own and the lung machine had her resting. So we wait. ECMO is her last chance. We don't know if our V is still in there, to be honest. We have no way of testing her brain activity besides trying to wake her up. They can't do a CT Scan with ECMO by her side. So we continue to ask you to pray. Pray so fervently. I didn't even think about praying yesterday. You all did it for us. You all kept our Veiyah alive with your cries to our most High King. Thank you. Thank you to the moon and back. Thank you, Thank you, Thank you. We love you Veiyah, wherever you are. If you are still with us here, please let us know. If you are already with your sister, Aderah, we can't describe what you've brought to our lives. You are more than anyone knows. You are Veiyah. We are so completely and utterly in love with you baby girl. And we'd give anything for one more day to see your smile, watch you walk, and of course, hear you sing. <3
Monday, April 16, 2012
After everything Veiyah has been through in her little lifetime, it's time for something good.
It's time for her to be showered with love and gifts,
deluged with respect and reward.
And we're not the only ones who thought so...
Who would have ever thought?
To have a child that gets to be a part of the "Make A Wish" program, is quite far fetched.
So, Why Veiyah? You don't WISH to have such an option, because it means something is wrong...
But, Veiyah was found to be someone with a life-threatening disease.
She has been through more than so many could ever go through in a lifetime.
And you know what?
She deserves every bit of it. Don't you think?
It was definitely hard to come up with a wish for Veiyah. Veiyah has been diagnosed to be only 12-15 months old developmentally. She doesn't know how to communicate the way we do. She doesn't understand what a wish is. She will probably not even realize we are on a trip that BELONGS to ...HER.
But we were told by Veiyah's heart doctors, to live each day as if there is no tomorrow. We don't know what tomorrow holds for Veiyah. For any of us...but especially Veiyah.
So, we will go. We will take pictures upon pictures. We will take video upon video. So that WHEN Veiyah grows up, she WILL know what was given to her.
The Guilt we could hold about us choosing something for Veiyah, due to her not being able to communicate things she enjoys...
just can't exsist.
Veiyah does commuincate in her own way. How then?
It's amazing how she can pick up a song and sing it everytime it comes on.
She won't speak to us,
but she'll sing.
Veiyah has picked up every song from her sisters, her nightly music, and of course, her favorite shows. Veggie Tales, PBS Kids, and...
We decided that Veiyah would somewhat understand where she is at the most magical place on earth. Because we know that it probably IS the most magical place on this earth.
We SO look forward to the MOST magical place, in God's Kingdom.
But for now, we are so ready to just pick up and go to Florida!! We've been waiting for 8 months now in the making.
Friday, April 27th at 6am, we leave Cedar Rapids, Iowa for Orlando, Florida.
Only to see Veiyah be treated like the royalty she is.
We will be greeted at the airport and will get to choose a car to rent for our week stay. We will be staying at an amazing place called "Give Kids the World" especially designed for "Make A Wish" kids from all over the world. This is a volunteer based village. We will have our own little Villa. There is so much to do at even this place PLUS going to all of the parks in Disney World. Ice Cream for breakfast! Life size Candy Land play ground, Splash Pad, Swimming pool, and a major holiday every day of the week! No tipping aloud. We will be served meals there without pay,
and the girls will get to be tucked in every night by a HUGE STUFFED RABBIT!
Don't worry, we're skipping that part. :)
We will go wherever we want, whenever we want. We will be moved to the front of every line since... Veiyah IS royalty...:)
Veiyah will see all of the princesses she smiles so big at when she sees them on TV or the toys that she plays with. She will see Mickey and Minnie!
She will experience the Ocean. Sand in her feet.
Things she might have never experienced in her life if such a thing hadn't presented itself.
A bit of Heaven on Earth.
Life's precious moments.
Life beyond hospital beds. Life beyond a cooped up house.
Life in the great outdoors, with the wind in her hair
and experience life like the true princess she is.
*Our Prayer? That Veiyah stays healthy just 2 more weeks! Veiyah has been throwing up on and off this month. Just Bile. We need to make sure she is healthy to go on this trip. Please pray for this blessing to over exceed our expectations, and for Veiyah to feel her BEST.
PS. Veiyah Walks!!
Thursday, February 16, 2012
Hi Everyone! We just wanted to say thank you for all of your prayers and encouraging words. Veiyah came home Saturday the 11th. We are now just working on getting her full feedings in, here at HOME!
She is doing GREAT! Scar looks wonderful and she has all of her crazy energy back!!
Thanks to those who recommended places and invited us to stay with them. What a sacrifice. We ended up moving to the main floor and didn't want to leave V alone at all there. So despite our sleep deprivation, V was comforted and safe!!
God Bless you all and Thank you so much again